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Dementia Activist

Fighting for Our Rights
Regular price £11.99
Regular price Sale price £11.99
What's happening to me?'

Successful translator and linguist Helga Rohra was understandably good with words - that is, until she found herself getting in a muddle when she spoke. She started to forget the way home, even though she could remember her address. Her confusing symptoms increased and Helga was diagnosed with dementia at age 50 - but she hasn't let herself be labelled with the usual stereotypes.

With entertaining vim Helga shows that her life is still as abundant and self-determined as ever, dismantling the negative stereotypes that often surround a dementia diagnosis. She speaks frankly and with humour about her diagnosis and life with young onset Lewy Body Dementia. She explains the changes in her everyday life and the challenges she faces, and shares practical tips that prove it is possible to live well with dementia. Helga also talks about her activism work, which has made hers one of the key voices internationally in dementia advocacy.
  • Published: Jul 21 2016
  • Pages: 152
  • 203 x 185mm
  • ISBN: 9781785920714
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Press Reviews

  • Christine Bryden, author of Who Will I Be When I Die?, Dancing with Dementia, and Nothing About Us, Without Us!

    Helga writes of the trauma of diagnosis, and seeking support. Yet her fighting spirit meant she became a great advocate for living positively with dementia. This book is a testimony to her amazing resilience, despite her daily battles with this invisible condition. Helga is a true dementia expert!
  • Professor Peter Mittler, CBE, Human Rights Advisor, Dementia Alliance International

    Speaks truth to power: listen, learn, ACT!