Selling Out the Spectrum
How Science Lost the Trust of Autistic People, and How It Can Win It Back
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When trust breaks down, how do we begin to fix it?
Set against the controversial history of genetic research into autism, from the Spectrum 10k study led by Professor Simon Baron-Cohen to the legacy of the Andrew Wakefield MMR scandal, this book explores the ways in which autistic people have been let down by science and what needs to be done to build more effective partnerships in the future.
Written by leading autistic journalist Liam O'Dell, Selling Out the Spectrum takes a thorough, balanced deep-dive into the issues surrounding the relationship between science and the autistic community, can explores how past damage can be effectively and meaningfully repaired.
Set against the controversial history of genetic research into autism, from the Spectrum 10k study led by Professor Simon Baron-Cohen to the legacy of the Andrew Wakefield MMR scandal, this book explores the ways in which autistic people have been let down by science and what needs to be done to build more effective partnerships in the future.
Written by leading autistic journalist Liam O'Dell, Selling Out the Spectrum takes a thorough, balanced deep-dive into the issues surrounding the relationship between science and the autistic community, can explores how past damage can be effectively and meaningfully repaired.
- Published: Nov 21 2024
- Pages: 240
- 214 x 136mm
- ISBN: 9781839976261
Press Reviews
James Ball, British investigative journalist and author
Since the events of 2016, we have talked about a crisis of trust - but it's never been just a single crisis, and it's never been one-way. In this book, Liam O'Dell deftly chronicles one of these many breakdowns of trust: this time, between autism researchers and autistic people. O'Dell tracks the roots of the crisis to the research malpractice of MMR researcher Andrew Wakefield, right through to the present day with original reporting on Spectrum 10K. The book serves as a vivid reminder that trust is a two-way street, a thing of value which always needs to be earned and maintained.